Spinal Cord Injury Support Group

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Resources

Darrell Gwynn Foundation

Started in 2002, the Darrell Gwynn Foundation exists to provide Awareness, Prevention, Support and ultimately, a Cure for Paralysis. To expedite specific cures, the Foundation assists in the funding of targeted research.

The Foundation helps improve the quality of life for those already afflicted with injury or illness, by providing necessary equipment or special services.

The Foundation is also dedicated to injury prevention, with special emphasis on programs targeting children.

The Miami Projects to Cure Paralysis

In 1985, Barth A. Green, M.D. and NFL Hall of Fame linebacker Nick Buoniconti helped found The Miami Project to Cure Paralysis after Nick's son, Marc, sustained a spinal cord injury during a college football game. Today, The Miami Project is the world's most comprehensive spinal cord injury research center, housed in the Lois Pope LIFE Center, a Center of Excellence at the University of Miami Miller School of Medicine. The Miami Project's international team of more than 200 scientists, researchers and clinicians take innovative approaches to the challenge of spinal cord injury.

The Miami Project's Human Clinical Trials Initiative will take discoveries found to be successful in laboratory studies and fast track them to human studies with the approval of the FDA. The Miami Project is well positioned and confident that we have the expertise, knowledge and drive to navigate through the FDA process and initiate new human clinical trials involving Schwann cell transplantation. This trial will be based in part on published work in which Miami Project scientists showed up to 70% return of normal walking function in experimental models. For more than 23 years, The Miami Project has worked carefully and diligently towards this goal and the results show that the time is right to make this important step into humans.

Shake-a-leg Miami

To heal broken spirits. To restore a measure of independence to broken bodies. To enable children and adults with physical, developmental and economic challenges to empower themselves. To provide a gateway to Biscayne Bay for all our neighbors in South Florida and visitors from around the world.

Florida Alliance for Assistive Services and Technology

Our Mission is to improve the quality of life for all Floridians with disabilities through advocacy and awareness activities that increase access to and acquisition of assistive services and technology.

We value each individual's right to achieve their highest potential and the possibilities that can be realized through collaborative efforts focused on the goal of improving life for Floridians with and without disabilities.

Sabrina Cohen Foundation for Stem Cell Research

The Sabrina Cohen Foundation for Stem Cell Research is a 501c3 nonprofit organization dedicated to bridging the gap between stem cell research and the infinite solutions it can provide for curing disease through education and raising funds for research.

Brain and Spinal Cord Injury Program

The BSCIP general program provides direct case management and resource facilitation as its primary services. This is accomplished by employing a statewide of case managers and rehabilitation counselors. Children receive services from the employment of Children's Medical Services nurse care coordinators and human services counselors. The program also employs regional managers who supervise staff in their region and who oversee locally the operation, development, and evaluation of the program's services and supports.

Florida Spinal Cord Injury Resource Center

The Florida Spinal Cord Injury Resource Center (FSCIRC), established in January 1994, serves as the statewide clearinghouse of SCI resource information for persons who have survived an SCI, their families and friends, healthcare professionals, support groups, the media, and the general public. The purpose and benefits in operating such a center are to:
Increase knowledge of SCI related resources.
Help prevent secondary medical complications resulting from lack of knowledge.
Foster independence through self-knowledge.
Provide immediate access to current SCI resource information when needed by consumers throughout their lifetime.

Provides newly injured clients with resource information specific to traumatic spinal cord injury. This information is distributed to the BSCIP regional offices in backpacks that case managers deliver and discuss with newly injured clients. The FSCIRC also maintains a resource library, toll-free telephone line, and web page to provide information to consumers, family members, and professionals. The resource center provides education and training on the medical and psychosocial issues related to spinal cord injuries to third-year medical students attending state universities in Florida. The center also conducts awareness education to selected high schools highlighting the cause of spinal cord injury and the actions that should be taken to reduce the chance of injury.

Recruits peer mentors with spinal cord injuries, coordinates the background checks, provides training and certification. Assigns peer mentors to newly injured clients. Coordinates payments to peer mentors for travel.

Conducts ongoing satisfaction surveys on all BSCIP clients successfully reintegrated back into the community. The purpose of these surveys are to ensure clients were provided appropriate information, were able to access federal, state and community resources, and were not experiencing issues impacting their health and safety. Provides information on resources available to address any issues identified in these surveys.

Conducts one year follow-up survey to assess client's status in the community. Provide clients with technical assistance to address any issues they may be experiencing.

Center for Independent Living of Broward

We are a not-for-profit charitable organization dedicated to providing a variety of services and advocacy by and for people with disabilities of Broward County.

Our mission is to offer assistance to people with disabilities in fulfilling their goals of independence and self-sufficiency.

Florida Disabled Outdoors Association

The Florida Disabled Outdoors Association is a non-profit 501(c)(3) organization that is working to ensure people with disabilities have those opportunities. Since it's inception in 1990, the FDOA has promoted accessible recreation to persons with disabilities as well as the general public through special events, newsletters and community education. FDOA has also assisted in compliance of the Americans with Disabilities Act and worked closely with many state, local and private organizations to develop, enhance and/or support recreation opportunities for the disabled across Florida and other states.

Division of Vocational Rehabilitation

Vocational Rehabilitation (VR) is a federal-state program that works with people who have physical or mental disabilities to prepare for, gain or retain employment. VR is committed to helping people with disabilities find meaningful careers.

Christopher & Dana Reeve Foundation

The Christopher & Dana Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

Brain Injury Association of Florida

The mission of this Association is to improve the quality of life for persons with brain injury and their families by creating a better future through brain injury awareness, prevention, research, education, support services, and advocacy.

We Connect NowWe Connect
We Connect Now is dedicated to uniting people interested in rights and issues affecting people with disabilities, with particular emphasis on college students and access to higher education and employment issues

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